Once diagnosed with Congenital Sucrase-Isomaltase Deficiency (CSID), your doctor will likely refer you to a registered dietitian (RD), a specialist in creating food plans for medical conditions that are related to diet.
Typically, an RD starts someone diagnosed with CSID on a restricted diet that eliminates most sugary and starchy foods and then gradually reintroduces certain foods to determine which ones you can eat without triggering gastrointestinal symptoms.
This elimination diet involves tracking exactly what you eat, when you eat it, and how you respond to specific foods so that trigger foods can be identified.
Here’s an overview of the foods that are CSID-safe and nutritious. It’s important to note that your dietitian may determine that some foods listed here don’t agree with you and identify foods not listed here that you can tolerate.
Fruits and Veggies. Fruits and vegetables form the foundation of any healthy diet, and even with Sugar Intolerance caused by CSID you can enjoy them. Low-sucrose fruits include blueberries, grapes, prunes, strawberries, cherries, and avocados. Vegetables in the low-sucrose category include broccoli, cauliflower, celery, cucumber, green beans, and peppers.
Plain Meats, Chicken, and Poultry. A lot of sources of protein are just fine if you have CSID, including unprocessed beef, chicken, lamb, fish, and eggs. “Plain” means no breading, sauces, and seasonings, though salt, pepper, butter, and oils are okay. “Plain” also means no processed meats, which are typically cured with sucrose. It’s okay to use butter, oils, salt, and pepper for flavor.
Dairy Foods. Dairy is another good source of protein as well as other nutrients you need, especially calcium and vitamin D, to keep your bones strong. Plain, unsweetened milk and yogurt are good choices, as are most hard cheeses. Although milk and yogurt taste great on their own, they can also be blended with sugar-safe fruits and veggies to make tasty, nourishing smoothies and drinks; whipped into dips and served with fruit or veggie dunkers; or turned into spreads and marinades for plain, unprocessed meats, chicken, and poultry.
Nuts and Nut Butters. Assuming you aren’t allergic to them, nuts and nut butters can be an important source of calories and nutrition for those with CSID. But because some nuts are higher in sucrose and starch, it’s best to stay away from them at first. Introduce them over time to make sure they agree with your stomach. Dipping sliced pears into peanut butter or smoothing some on celery stalks are great, safe ways to enjoy this protein-packed snack food.
Whole Grains. Whole grains are a good source of energy and important nutrients, but you may not tolerate whole-grain breads and cereals and other grains. It’s important to work closely with your RD to see which of these foods may be an option for you.